Bart van de Warrenburg is professor of Neurology and medical lead of the expert center for rare and genetic movement disorders at Radboudumc, Nijmegen, the Netherlands. He did a PhD on autosomal dominant cerebellar ataxias and, after his neurology residency, was a movement disorders fellow at Queen Square, London, UK. He is a former visiting professor at UKM Medical Center, Kuala Lumpur, Malaysia. As research group leader, Van de Warrenburg does translational research into rare movement disorders, with a strong focus on ataxias, and current efforts center around trial-readiness and the development and testing of therapies for these disorders. He is currently chair of the MDS Ataxia Study Group and of the Ataxia-ACT (Advisory Committee Therapeutics) for the Ataxia Global Initiative, and member of various national and international ataxia research consortia.
Cure Rare Disease, a non-profit organization (Tax ID number 82-2473513), is qualified as a tax-exempt organization under section 501(c)(3) of the IRS and has been designated as a “public charity” under section 170.