Cure Rare Disease: Changing the Paradigm to End Duchenne & Rare Disease
We bridge the gap between researchers and a cure through an unprecedented customized medicine development, by supporting families through their journey and educating the global community.
Our collaborations strive to accelerate cures for rare genetic disorders including but not limited to Muscular dystrophies (Duchenne, Limb-girdle, Becker’s), Charcot-Marie-Tooth, cystic fibrosis, Sickle Cell disease, Canavan disease and Spinal Muscular Atrophy.
2019 Annual Gala
Thursday, October 24, 2019
Wyndham Boston Beacon Hill
Cure Rare Disease’s annual gala takes place during the fall of each year. Supporters gather for an evening including an open bar reception, dinner and live music. At the gala, there will be both a silent and live auction along with a fun game of “heads & tails”. All proceeds raised go to benefit Cure Rare Disease in our mission to develop customized therapeutics for rare, genetic diseases. Dress code: cocktail attire.