Cure Rare Disease: Changing the Paradigm to End Duchenne & Rare Disease
We bridge the gap between researchers and a cure through an unprecedented customized medicine development, by supporting families through their journey and educating the global community.
Our collaborations strive to accelerate cures for rare genetic disorders including but not limited to Muscular dystrophies (Duchenne, Limb-girdle, Becker’s), Charcot-Marie-Tooth, cystic fibrosis, Sickle Cell disease, Canavan disease and Spinal Muscular Atrophy.
2019 Bike Ride Fundraiser
Saturday, September 21, 2019
Cape Cod Rail Trail, Yarmouth MA
Ride to Cure Rare Disease is a bike ride event, not a race, which brings together riders from all walks of life united in the mission to end rare disease as they ride through beautiful scenery of Cape Cod.