Hear community perspectives on topics ranging from navigating a diagnosis to reflecting on clinical trial experiences.
My name is Katie Kuhl and I am a junior in high school right now. I am mostly focused on school and am involved in the math team, DECA, pre-med club, student council, and volunteering at my local animal shelter…
Jessica Curran is a DMD mother to her son Conner, CRD board member as well as a DMD patient advocate.
May is Ehlers Danlos Syndrome (EDS) Awareness Month, so today I’m sharing my experience with the condition. I have hypermobility type EDS (hEDS), but there are 12 other types of EDS...