Each year our community hosts dozens of fundraisers around the US that raise funds to support our research. With the incredible support we receive, we are able to advance life-saving customized therapeutics through development to get to the patients who desperately need them.
Getting started is easy! Read below to learn about some simple and easy ideas for hosting your own Cure Rare Disease fundraiser. We are here to support you!
WE ARE INNOVATIVE
With preclinical, clinical, and translational research happening through our world-leading research collaborators, we are able to rapidly develop therapeutics designed for the individual’s genetic mutation.
WE ARE NIMBLE
We take our commitment to transparency seriously. 90+ cents of every dollar you raise goes directly to customized therapy development.
OUR BOTTOM LINE IS THE PATIENT
We are dedicated to developing effective therapeutics for patients who suffer from rare, genetic diseases. We measure ourselves by the number of patients we’ve helped, not by how much money we’ve raised.
It’s easy to start your own fundraiser or donate to an existing fundraiser using Give Lively, Cure Rare Disease’s fundraising platform.
Give Lively will walk you through the steps to start a fundraising page and share your event. Visit this site by clicking the link below.
Video games are no longer just for fun. Now they are benefiting the people of Cure Rare Disease.
With Tiltify it’s easy to start your own fundraiser or donate to another gamer. Add your livestream and incentives to drive participation.
When is Gaming to Cure Rare Disease?
Anytime! You can fundraise and sign up whenever you want. Additionally, we host regular marathons on the weekends (our first one is on Saturday, March 28, 2020).
Who can participate?
Anyone over the age of 13 can host and set up an event online. Participants and attendees can be any age.
Do I have to stream?
Nope! You’re welcome to play games and raise awareness for Cure Rare Disease without streaming your games. Be sure to use social media to let family and friends know when you’ll be playing and encourage them to support your event. Tiltify is a great platform for gaming fundraising and Cure Rare Disease has an account on the platform that will allow gamers to stream and fundraise.
How do I stream?
You can stream on any number of live streaming services, like Twitch, YouTube, Mixer or Facebook.
There are many helpful guides out there to get started with streaming, like Twitch’s helpful starter guide that is filled with How-To’s.
You will be given the option when you create a new campaign to include a Twitch ID. This will embed your Twitch channel in your campaign. You are free to remove this at any time.
Please note that streaming may require additional hardware or software and will consume more data than just playing a game.
What games can I play?
Video games, board games, card games, yard games, etc. are all great ways to have fun and support the mission to end rare, childhood diseases.
Cure Rare Disease reserves the right to remove accounts that engage in inappropriate actions from the program.
How do I fundraise based on my gaming performance?
Performance-based fundraising empowers teams to raise money through their performance during a game or an event. Supporters can pledge a donation for every recorded touchdown, home run, point, goal, mile or any measurable stat during a game or an event. The game or event can last for a single day or last the entire season. After game results are finalized, pledges automatically turn into donations that directly benefit St. Jude.
Performance-based fundraising allows teams to use their performance to earn donations by simply playing the games and activities they love!
