By John Nelander Special to the Daily News | Posted Feb 15, 2020 at 10:10 AM
Palm Beach grandparents Don and Nancy Herzog are working with a nonprofit biotech organization that targets rare diseases to defeat a foe that threatens their 4-year-old grandson.
Palm Beach grandparents Don and Nancy Herzog are battling the clock to defeat a foe that threatens their 4-year-old grandson – a progressive disease called Duchenne muscular dystrophy that takes aim at children.
Duchenne is a disease in which a gene responsible for regenerating muscles has been compromised, interfering with normal childhood muscle development. Over time, Duchenne patients weaken and they eventually lose the ability to walk. The disease is fatal.
The fortunes of their grandson, Max — one of the Herzogs’ five grandchildren — took an abrupt turn when he was still an infant after a routine blood test showed elevated liver enzymes, which can mean possible damage to the heart muscle.
“I Googled it, and it said muscular dystrophy,” said Nancy, a nurse. “And I said, ‘Oh my God.’