Mystic Oil, Murphy Beverages team up to help Branford boy battle rare disease
By Lisa Reisman Oct 16, 2019
When Branford’s Max Herzog was 18 months old, doctors dispensed some simple words of advice for his parents.
No need to continue bringing Max back every six months, they told Jesse and Stephanie Herzog. Call us if something changes.
In January 2016, when he was 6 months old, Max had been diagnosed with Duchenne muscular dystrophy, a fatal, childhood genetic disease that impacts one in 3,500 boys worldwide, and is characterized by progressive muscle weakness. There is no treatment or cure. The average life expectancy: 26.
Starting this month, both Mystic Oil and Murphy Beverage Co. have initiated campaigns on the Shoreline to support Max’s battle through the nonprofit Cure Rare Disease, a Boston-based non-profit dedicated to precision therapeutics for rare genetic diseases.
Those efforts are testament to an unlikely set of circumstances involving three families that might well save the life of Max, a happy-go-lucky 4-year-old who enjoys everything Batman, before he even knows he has the disease.
One family is the Horgans. Rich Horgan is CRD’s founder and president. His younger brother Terry is afflicted with DMD. So were three of his uncles on his mother’s side, all of whom had succumbed to the disease at 14, 16 and 19.