How a brother’s love is forging the way to develop precision medicine to find a cure for Duchenne and other rare diseases
Rich Horgan is the Founder and President of Cure Rare Disease, a Boston-based nonprofit biotechnology company. Rich has a deep passion for Duchenne muscular dystrophy (DMD) and other rare diseases. His younger brother, Terry, has the disease and three generations of his family have been affected by DMD, a fatal, neuromuscular disease. With his personal connection, Rich has formed CRD and Myofinity Biosciences and he has been helping to lead the way in research, forming a collaboration with world-class researchers and clinicians to pioneer the development of customized therapies for Duchenne and other rare diseases. Rich talks to RARE Revolution about his personal journey and how it led to this pioneering work.