Ride to Cure Rare Disease
Progressive, Boston-based non-profit, Cure Rare Disease (CRD) will host its annual “Ride to Cure Rare Disease” event on Saturday, September 21,, 2019 in South Yarmouth from 9:00 AM – 1:00 PM with a reception to follow at the Sea Dog Brew Pub.
Ride to Cure Rare Disease is the signature charity bike ride for CRD. Riders will have an option to choose between the 25-mile route from the new head of the beautiful Cape Cod Rail Trail through the scenic Nickerson State Park, or the 50-mile route which continues onward to Wellfleet and back to South Yarmouth.
There are over 7,000 rare diseases impacting 300M+ people worldwide, and time is of the essence. Until very recently, patients with life-threatening diseases have had to rely on the longstanding practice of developing “one size fits all” treatments through clinical trials, a process that can take 12-15 years. With less than 10% of the drugs tested approved by the FDA, this process has been and continues to be slow and unsuccessful for those who are suffering.