Mystic Oil have just announced the launch of charitable fundraising programs to support one local boy’s battle against Duchenne muscular dystrophy (DMD) in partnership with Cure Rare Disease (CRD), a leading non-profit dedicated to precision medicine therapeutics for rare genetic diseases.
In February of 2018, Branford residents, Jesse and Stephanie Herzog, connected with CRD’s Founder & President, Rich Horgan, to seek deeper insight for their son, Max (age 4) who has been bravely fighting against DMD since his diagnosis at just 6 months old. Horgan’s younger brother, Terry (age 24), and family have also been impacted by DMD for three generations.
CRD is collaborating with world-class researchers, geneticists, and clinicians nationwide to develop customized therapeutics for select rare diseases like DMD and seven others. The Herzogs recently joined CRD’s board with the goal to support their efforts and develop a personalized treatment for Max, versus the traditional “one-size-fits-all” industry approach that has struggled to date.
In April 2019, CRD achieved an unmatched milestone using gene-editing technology that successfully cured Terry’s cells in a lab dish with their customized therapeutic, and are working towards approval for clinical trial next summer. Max’s treatment is under development in parallel, but time is of the essence.
After hearing the Herzog’s story first-hand, Mystic Oil is eager to give back with their first charitable campaign in October that aims to raise over $40,000 for CRD over the next year, thanks to a significant portion of gas sale profits that will be donated from two locations: Mystic Village Mobil [66 Whitehall Ave., Mystic, CT] and Guilford Citgo [455 Boston Post Rd., Guilford, CT].
“I recently held a meeting with Jesse Herzog, a distinguished industry leader, who bravely shared his son Max’s story and the grim reality that every patient’s family must face when battling a rare disease like DMD,” said Peter Zelken, President of Mystic Oil. “I was touched not only by his story, but also by his testament to Rich Horgan, who has made finding a cure for rare diseases through CRD his life’s mission. The Herzog family has given much throughout the years and have never asked for anything in return, so on behalf of Mystic Oil, we’re proud to give back and do our part to help their important cause.”
“When I met with the Herzogs, I deeply resonated with their determination and passion to help their son and end Duchenne. It was an honor to welcome them into the organization as we push forward to redefine the paradigm of ending rare disease,” said Rich Horgan, Founder & President of Cure Rare Disease. “Our mission is to pioneer customized therapeutic developments in record time, enabled by our stellar team of researchers, partners, and donors. Every single dollar counts, and with the generosity and support of our local partners, we can accelerate our efforts—bringing us closer to a cure.”
Support This Sponsorship at these Mystic Oil Locations:
Mystic Village Mobil
66 Whitehall Ave., Mystic, CT 06355
455 Boston Post Rd., Guilford, CT 06437
ABOUT MYSTIC OIL
Mystic Oil Co., Inc. is a wholesale petroleum distributor in Southeastern CT supplying businesses in CT, RI, MA and NY. Led by the fourth generation of a family business incorporated in 1956, its roots date back to 1914. With each generation brought new focus—Bulk oil terminals in the 1950s, home heat through the 1990s, a retail c-store chain into the 2000s and now fully focused on wholesale petroleum distribution. Mystic Oil Co., Inc. combines its understanding of the modern hypercompetitive retail environment with generations of industry experience to deliver unparalleled customer service to its clientele.