A diagnosis like Duchenne can force you to do things you may never thought you’d be doing. Good things, and difficult things. A diagnosis changes you. It influences the decisions you make, and often can require a bit more of you, both physically and mentally.
My husband, myself, and our four kids (Hans 8, Otto 6, Fritz 4, Ingrid 2) currently find ourselves on a month long cross country road trip. Four weeks ago we loaded up our mini-van in Arizona and headed east; stopping for a week in Nebraska, then Ohio, then Connecticut, and now Wisconsin. We then plan to see South Dakota, and Wyoming, before rolling back into our home state.